I’m very sorry that I haven’t updated yet today or returned texts, emails…. It has been a very, very, very productive, busy and good day. Ally’s blood culture from the 19th is so far staying negative. 🙂 We draw blood every morning and if this one stays negative, plus we get negatives for the 20th and 21st, there is a VERY good chance Ally will get to go home on Saturday!!!!! She will be on IV antibiotics a few times a day for about 12 more days after that, but she will be HOME!!! She is doing very well with no fevers today. She still has a bit of mucus, but treatments are going smoothly and she is in good spirits. She even had a visit from her teacher, Ms. Luz, and one-on-one aid, Ms. Kava, who brought cards from her entire school and belated Valentines’ gifts!!!!! Thank you to New Horizon Center and all of her friends including Adriana Marquez Yazmine Reyes. We also had another mom of medically fragile children visit today. This is the second mom in one of my support groups which means a ton, as we LOVE healthy visitors. Thank you Cindy Ruting Mammoser and Terese Milligan Byrne!!!! Today we got to talk with Ally’s new orthopedic surgeon and discuss plans for surgery and a few steps that we need to take before it occurs. As long as Ally stays free of blood infections and healthy it will most likely occur mid to late March at Lutheran General. There is soooo much more, but I will share more when I can. I am soooooo happy with how things are going and the great teamwork at Lutheran General and willingness to work with me to help Ally. I even filled out an application to be considered for their Parent Advisory Council. I almost positive Lutheran General will be Ally’s primary hospital moving forward. Lurie Children’s is great, but there are some extra pros here and not dealing with downtown chaos and expenses is a big one.
Thank you again for everyone’s support, well wishes and prayers!!!!
Angel Ally Blog - SMA Type 1 
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