Archive for September, 2010

One more day till our MDA Zoo Walk. It is Saturday, September 25th at Brookfield Zoo and will be a wonderful day of family and friends coming together in honor of Ally and many others affected. We will have about 60 team members on the Ally’s Angels Team. It is NOT too late to join us and/or make a donation in honor of Ally. Every $1 brings us one step closer to treatment and a cure for SMA and offers families support.

Our team webpage to donate or join  —  https://www.joinmda.org/mdawalkchicago2010/AllysAngels
Thanks so much to those who have donated already or to past walks.

Here is some information if you will be joining us tomorrow...


1) If you have a zoo membership #, please try to email me with it this morning so that the MDA can pay for less entrance fees and raise more $$.  If you get this later, still email or bring and we will see if it will work.
2) Please try your best to arrive between 7:30 am and 8 am.  We will meet at the top of the tunnel, near the pay booths.  Parking and zoo admission is free.  The walk does not begin till 9 am, but there are lots of pre-walk activities.  I have to turn in all $$ for our team and hand out all t-shirts.  No need for anyone else to go to any of the tables.  You will need to fill out a waiver form before going in the zoo.
3) Please have your MDA donations in an envelope with your name and total (or let me know what you did online).  For each $74 raised, you will get an official MDA walk t-shirt.  This is different than the past, so everyone will not get an MDA shirt unless they have raised $74.  We are happy to have team members in honor of Ally with any donation amount.  I’ll most likely give you this shirt a little later in the morning.
4) I will have our ash gray Ally’s Angels team shirts and have enough for everyone.  If possible, I am asking for a $5 donation to the Angel Allyson Fund NFP (or cash) for each Ally shirt. The companies that sponsored mostly donated directly to the MDA or gave to our last walk in June for FSMA, so I had to pay most of the t-shirt costs myself.  I’d love to continue to have one for every team member, but times are tight, so any donation toward your shirt is greatly appreciated.  This is separate from your MDA donation, but any extra I collect would go towards our team total.  If you’d rather not get an Ally shirt, that is okay too.
5) We will try to take a team photo before the walk begins, so please try to gather together inside.  We have about 60 team members this year, so it should be one AMAZING photo.  I also try to take photos of everyone with Ally, so please remind me if I miss someone.
6) When the walk starts, you may stay close to our team, or walk at your own pace.
7) The walk ends at about 10:30 with some announcements.  You are welcome to stay at the zoo all day long.
Thanks again for joining us,
Tina, Ally and the Krajewski Family
PS — Here are our cell phone numbers in case you have trouble finding us.  Tina 773-981-7211, Billy 773-981-7219
PSS – One more thing.  Our friend Mama K (Kathy) got a one night stay at aloft hotel in Rosemont.  She will be selling raffle tickets to win this stay.  Ally $$ will go towards our Ally’s Angels Team Total.

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Summer has officially come to an end.  Overall, I believe it was a GREAT summer for our family.  We had lots of fun, even with spending 3 weeks at Children’s Memorial for Ally to get her trach.  It is really a positive change in her life and we are so happy we decided to do this pro-actively so that she can handle illnesses better, plus now she always has a stable airway.  She started to act a little “off” a week ago with some mucus plugging, probably a cold.  Amazingly, she has been handling it very well though once we clear her out during her regular treatments.  It is so different and easier for her and us. I pray this continues since a cold usually meant a collapsed lung and hospitalization without her trach.  She is almost back to her new baseline and is spending 30 minutes (or more) off her ventilator about twice a day.  Today we got official permission to go to 45 minutes off (breathing on her own).  What’s strange is that I really don’t mind if she is off or on since there are pros to both.  A big pro to her trach and ventilator is that she can vocalize so much more and is louder.  She also has more energy and can sit up more.  A pro to being off the ventilator is being able to move around easier and less tubing when we hold her, but we can work around tubes if she is more comfortable. We will continue to adjust and try new things with Ally.

The newest is a new start to the school year!!!!! The girls started school this week and seem to all really like it. Kristyn is at Lane Tech as a freshman and is a varsity cheerleader. Melissa is in 1st grade with a super teacher and excited about reading. Ally is in Pre 4 at Stock with all new teachers for special ed and blended with a very caring aide, her home nurses, and me (for now).

Be sure to check out the beginning of the school year pics and also some from our end of summer outings. Some highlights include: Brookfield Zoo, MDA Golf Outing, MDA Labor Day Telethon, Disney Princesses on Ice….

Click on the album cover below to see ALL the pics and some short videos…

2010-09-11 End summer, MDA, start school

The 2010 MDA Brookfield Zoo Walk is VERY quickly approaching on Saturday, September 25th. It is from about 7:30/8 am till about 10:30 am.  Zoo admission and parking is free with your donation and fundraising!  We would LOVE to have you on the Ally’s Angels Team!  I need to know ASAP if you will be joining us and your t-shirt size(s).  Please email me or call today!!!!!  tina@angelally.com or 773-283-7211.  I must let the MDA know our tentative team for their planning  ASAP.  If you have a zoo membership, I also need your number so that the MDA is not charged by the zoo for you and your family.  This way more $$$ can be raised as we work towards a CURE for SMA and other muscular dystrophies.  We are also looking for companies to sponsor the Ally’s Angels Team.  With a donation of $150 or more (by Sept 15th), they will also be on the back of our team shirts.

To join our team, go to….https://www.joinmda.org/mdawalkchicago2010/AllysAngels

If unable to join us, PLEASE consider making a safe, easy, online donation at… https://www.joinmda.org/mdawalkchicago2010/tina

New this year for MDA Zoo Walk–

1) Official MDA walk t-shirts will only be issued to each person who raises $74 or more. This funds 1 minute of research and provides many things for families affected.  I know this can be hard to do as a family, so please donate or raise what you can and still join us, PLEASE.  My main goal is to have a HUGE team walking in honor of Ally.

2) Angel Ally t-shirts are available for a $5 donation (sizes 2T to 3XL) and will have a new picture of Ally on the front in black and white and will be ash gray. I am also going to find out about sweatshirts, so let me know if you are interested.  We usually wear the t-shirts at the walk, but since they have been a big hit and everyone wants one, we will be taking orders in advance.  If you are walking, it is optional if you wear an Ally shirt or not.  Please submit all orders and sizes directly to  Tina 773-283-7211 or Sandi 847-875-5304 by Sept. 15th. We may be able to place orders after the event too, so feel free to contact us if you would like to order a shirt.  We will put the next order in by Oct. 1stPlease make checks payable in advance to Angel Allyson Fund, NFP.  Mail directly to Sandi or Tina Krajewski (3614 N. New England, Chicago, IL 60634).

We do two walks each year (0ne for MDA and one for Families of SMA).  I understand economic times are tough, but if you are able to join us and/or make even a small donation in honor of Ally, it means the world to us.  Every $1, $5… $20, $100… is one step closer to a cure and treatment.

I sincerely hope that you’ll take the opportunity to support Ally, her friends and the MDA. If you have any questions, please don’t hesitate to call or  e-mail me.

Thank you again for your past and continued support to Ally and our family!!!!

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We will be at the MDA Telethon tomorrow. Check out CH 9 Nationwide and you might see Ally, Me and her nurse Megan anywhere between 8am-3pm???

If you’d like to donate in honor of Ally, please go tohttps://www.joinmda.org/mdawalkchicago2010/AllysAngels. Also looking for more team members for the Zoo Walk on Sept 25th. Thanks in advance ; )

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