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Archive for March, 2016

 

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Ally is kinda at a standstill as we try some methods to try to help her with urine retention and now high heartrates (??discomfort, side effect of meds???). Today she travelled to another part of the hospital and got a baseline new dexa scan to check her bone density (for possible future infusions to help with brittle bones and prevent fractures), got her hair washed and cleaned up (thanks Emma Lockwood for sharing your basin), needed a second dressing on her back due to it getting dirty, I learned to sterile cathe her….. Thank you to Terri Cox Adora Lewis, Beverly Hutch, and Michelle Denic and Crothall team (big/nice surprises) for gifts and meal cards. Thank you also to the 9 ladies who have donated $25 toward Ronald McDonald House Thirty-One Products or ordered products. It’s not to late to make a donation thru Chase Quickpay or Paypal to tina@angelally.com. Thanks again for everyone’s support and prayers!!!

 

 

 

 

 

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PRETTY PLEASE — Help our family “Pay it Forward”
1) Make a donation TODAY of $25 or ANY amount towards Thirty-One products that will be purchased for families at Ronald McDonald House Charities of Greater Cincinnati (RMH) as a way to say Thank You for ALL they have done to help our family during Ally’s spinal surgery and recovery. We are at $150 with a goal of $500.
 
You can do this by using PayPal or Chase QuickPay and submitting a donation friend to friend to tina@angelally.com
 
2) Place an order TODAY (if possible by 6pm) for yourself and I will donate my entire 25% commission towards additional products to be donated to RMH.
 
 
Both of these are really helpful in helping our family since it will warm my heart immensely to help others and “Pay it Forward” as a way of saying Thanks for a lot of the stress relieved by having RMH across the street to eat some meals, shower and nap some. I even got an hour massage there yesterday! In addition, it helps me meet my monthly sales goal as I am VERY close to becoming a director with Thirty-One.
 
Thank you to everyone’s support and prayers!!! Thank you also to those who have already made a donation and those who decide to make a purchase.
 
Any questions, message me or call 773-981-7211

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A few pictures of Ally over the last three days. One of the days she tolerated 4 hours in her chair and other days 1-3 hours due to pain from her bladder issues. She is off ALL pain meds including Tylenol and just on a muscle relaxer 3 time a day. I LOVE the hospital gowns my mom, Carol Neumann Smaron, made for her!! We are also trying out a new trach that might be more comfortable for Ally.

 

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Just wanted to do a very quick post and hope to do an update on Ally’s blog today. Ally is doing well with her recovery from spine surgery (off all pain meds and only on a muscle relaxer) but is dealing with serious urine retention issues and urology is now involved. We will be here for probably quite a few more days and are almost out of meal cards. If anyone isl interested in purchasing some, I just found out there is a way to do a Gift Card through the concierge “Best Upon Request” that can be used for room meal cards, cafeteria credit, and/or them to go pick up meals and other store needs within a 5 mile radius of the hospital. Their number is 513-803-4871 and the best time to call EST is 7:30-12:00 and 3-4:30 and messages can be left in between. They are only open M-F. If we have any credit at the end, they can be turned into a gift card for gas, a store….

In addition – Ecards can be sent to Ally using the link http://www.cincinnatichildrens.org/patients/resources/ecard/. Ally’s hospital room is A340.

The other way to support us is to help us “Pay it Forward” to Ronald McDonald House and families by donating $25 or any amount toward Thirty-One items that will be donated to families that use their services. This means a ton to my heart as a way of showing thanks and will help me meet my sales goals as I work towards being a director with Thirty-One Gifts​. You can use PayPal or Chase QuickPay to tina@angelally.com.

Thanks again. Through family and friend support, things are much easier to handle, even with this setback. Looking at the silver lining of how much better Ally is due to her successful spine surgery though.

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BIG FAVOR OF PAYING IT FORWARD – Will YOU help?
Looking for 20 or more friends/family to donate $25 to help families who use Ronald McDonald House. Donate ANY amount to my PayPal account (friend to friend to avoid fees) or Chase QuickPay at tina@angelally.com. Goal is to have $500 or more by Wednesday 3/30. PLEASE share with friends.
 
As most of you know, my 10 year old, Ally is currently in Cincinnati Childrens Hospital recovering from spine surgery. We are SUPER fortunate to have gotten into Ronald McDonald House Charities of Greater Cincinnati (RMH) right across the street so we can take small breaks, showers, have some meals…. RMH is also one of the charities that Thirty-One donates to and I am a Senior Consultant with the company. Upon arrival at RMH this time and in November, we got a Thirty-One bag filled with lots of goodies for Ally and our family. I would like to donate a minimum $500 in products for them to give to future families. By doing this, I will Pay it Forward a little and also meet my March sales goal as I am close to qualifying to being a director. Will you help me and other families? If you’d like more info, feel free to contact me by messaging or email – tina@angelally.com

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Just a couple more pics to end Easter Day. Melissa was at my sister, Sandi Maruszczak-Potempa with my mom. Kristyn headed back to college at University of Illinois and Ally had a very good day at Cincinnati Children’s Hospital. We were able to get Ally up into her powerchair for TWO two hour sessions with no pain. I even took a one hour nap at the hospital, three hour nap and Easter dinner at Ronald McDonald House (across the street from the hospital) and I plan to sleep at least half the night at RMH with Billy. We have an excellent team of nurses and respiratory therapists, so this is actually possible. I could also get back in a few minutes if needed. Ally is also doing excellent thanks to God and all the prayers!

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🐰 Happy Easter from Ally and our family!!!

 

Sunday, 3/27 @ 11:30 EST Update
Ally’s tummy is doing much better since we are giving her gut a rest to recover better from 8 hours of anesthesia and pain meds. She still has lots of gas on her morning stomach X-ray. Ally is not being fed her regular mixture but instead is getting nutrition thru TPN (a special IV food made specifically to her needs). Her intestine tract is waking up and her tummy is much better and softer. We do have to cath Ally, but she has had bowel movements on her own. We have been lowering her pain meds since she is doing so well and are completely eliminating oxycodone today. She will still have IV Tylenol and if needed diludid for pain. Ally continues to get in her chair 1x a day for 1-2 hours and we hope to do 2 sessions today and moving forward. The Easter Bunny (with mom and dad’s help on a short outing) brought Ally LOTS of goodies today to reward her for her bravery. Ally’s favorite thing in her basket is a Katy Perry DVD.

 

Ally will need to be in the hospital until her tummy is back to normal and she can handle her regular feeds. This could be a few days to much longer, but we are still HAPPY with her recovery so far.

Thank you again for your support, well wishes and prayers.

 

PS – My cell phone was replaced and is working. I can be reached at 773–981-7211 through messaging.

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