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Angel Ally Blog - SMA Type 1 
Looking good! Are you going to add all the old stuff too (if you decide not to use Caringbridge), for anyone that is behind and wants to catch up OR is reading for the first time?
The old stuff will stay on caringbridge. Anyone who wants to learn about Ally from the beginning and see old journal entries can go to http://www.caringbridge.org/visit/allysonkrajewski
Thanks for sharing a glimse of your daughters life. I work at a peds hospital & we recently had a new SMA diagnosis. I was curious how other families coped & how their children developed. It was nice to see. Thank you.
Hey Tina – the website looks great – I love reading all the updates on Alley. Take care we’re always thinking of you guys.
Love Vicki, Geoff, Steven & Matthew
Way to go with your speech therapy! Love your new site!
Really like what you’ve done to your new site. The greatest at keeping us up to date, pics, video, etc…Soooo appreciated.
Your Journal is just Amazing. Help’s tell folk’s Allyson’s and Family’s story which I believe to be very critical for folk’s that do not understand SMA or special needs in general which is LONG OVERDUE!! Your step-by-step journey is helping others all around the world….Keep up the great work. GOD Bless the entire family.
Hello! We have recently found Ally’s site and have fallen in love. What a sweet girl. She is doing so well. We are glad to see that you all are home and that Ally is doing great! I love all of your videos. She is doing so much.
If you don’t mind me asking what type of stand is holding up the dynavox. We are looking to get one too. I thought he had discussed mounting it to the wheel chair. But I see yours is on your inside base of your other chair. Can you move it from the different chairs? Thank you for you help.
Love
Jennifer
I love the new site. Abbie and I watched the new videos of Ally and that computer she controls with her eyes is super cool!! We are so glad that she is home!
There’s a wisdom
seldom from above
Her name is Ally
to us she is Love
Teaching each day
let us also play
her girly charm
and beautiful arm
like a champ
bright as lamp
makes world right
our guiding light
nothing for granted
simply enchanted
daily fighting SMA
and oh by the way
look in her eyes
so very wise
tender angel Allyson
your name in
ireland
stands for honest
You truly are the
world’s fondest