Archive for May, 2013

And this was all just since yesterday!  HAPPY MOTHER'S DAY!

And this was all just since yesterday! HAPPY MOTHER’S DAY!

Hope every MOM, GRANDMA and those that fill in as MOMS have an absolutely WONDERFUL Mothers’s Day!  I got this GREAT card from my Aunt Joy and felt it describes my life as a mom PERFECTLY!!!  Thanks sooooo much Aunt Joy!

We’ve been pretty busy the last month or so… Melissa celebrated her 9th Birthday which was April 24th with friends at Laser Quest and a sleep over.  Ally had her third pamidronate/bone infusion in the outpatient infusion center (for 5 hours) at Lurie Children’s hospital and unfortunately was sick for about a whole week after with flu like symptoms that can result from the infusions or another bug or combo, but is all better now.  Kristyn’s cheerleading season ended with a special banquet.  She’s a junior and has also been studying and taking her AP exams and ACT test.  My dad had his second part of his heart surgery, had some breathing and pain complications which resulted in 2 weeks recovery at Northwestern hospital and lots of advocating by me.  He is now recovering at our house while he is also adjusting to using a bi-pap breathing  machine to sleep safer at night.  He will go back to his senior apartment in another week or so.  I am still advocating/fighting with the pro-bono help of a  law group to get Ally the education she deserves and the right to safely attend school with her home nurses.  She unfortunately has only had limited homebound instruction for ALL of 1st grade and deserves to attend a school with friends and lots of fun/learning activities compared to her 1 hour of instruction at home.  She also needs her therapies. Yesterday we attended my nephew Vinny’s 1st communion…. (Picture Albums will be posted at the end of this blog!)

Coming up on Saturday, June 8th is our next walk in honor of Ally and all the kids, adults and angels who have Spinal Muscular Atrophy.  It is the IL Families of SMA Walk-N-Roll at Independence Grove in Libertyville, IL.  Registration and fun begins at 8:30am and the walk starts at 10:30.  We are REALLY hoping some family and friends will join us for a morning of fun while we work towards a CURE and support for families dealing with this disease.  I understand not everyone can come or contribute to each walk we do, but please know it means the world to us to those that are able to help or join us once in awhile.  SMA is still a HUGE part of our lives and so many other families.  By helping, one day there WILL be a CURE and in the meantime, you are offering support to families too!

For more information on the walk, see my previous blog post (https://angelally.wordpress.com/2013/05/02/need-help-and-family-and-friends-to-join-the-allys-angels-team-il-families-of-sma-walk-n-roll-on-june-8th/).  We are in GREAT need of donations and its not too late to be a business sponsor and have your logo on the back of the official walk t-shirt.

To make a donation or join our team, go to Ally’s Angels Team page at http://www.fsma.org/LWC/ally.

Thanks again for everyone’s support and friendships!!!

Enjoy these photo albums on Picasa.  Just click on the album cover to see ALL the GREAT photos

2013-05 Merry May
2013-04 Melissa singing VIDEOS

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Families of Spinal Muscular Atrophy Walk and Roll information

7th Annual Illinois Chapter Walk-n-Roll
Sat 06/08/2013
Registration starts at 8:30 a.m.
Kick off time at 10:30 a.m. to 1:30 p.m.

Independence Grove Forest Preserve, Libertyville IL

1)  This is the website where you can get more information about the Walk and Roll — http://www.fsma.org/Fundraising/EventsCalendar/index.cfm?ID=7634&blnShowBack=False&idContentType=1154&Event=7634
On that webpage, there are links to pledge sheets and general business sponsor letter for monetary donations.
 I will also attach a personal business donation letter, the corporate sponsor pack (which is more detailed than the donation letter) and pledge sheet.  If a company donates $250 or more (in cash/check or that value of food/raffle items) by May 15th and submits a jpeg of their logo, they will be on the back of the official walk t-shirt.
2) Ally’s Angels Team page is http://www.fsma.org/LWC/ally 
This is where you can donate directly to our team and join our team.  If you’d like to join our team, you’ll have a TON of FUN!!!!
It’s best to register ASAP to ensure the correct t-shirt size that you get with your registration fee.
We are also looking for volunteers to help with set-up, tear down and maybe some cheerleaders or a group (?Windy City Rollers or a high school/grammar school group) who would like to cheer people along the walk and at the beginning and end.
Adult (18 & Over) $25.00 for 1 person
Youth Registration (5 to 17) $10.00 for 1 person
Child Registration (4 and Under) $0.00 for 1 person
Individuals Affected by SMA $0.00 for 1 person
Thank you sooooo much for your support!!!!
Tina, Ally and the Krajewski Family

Tina Krajewski
Mom & Pampered Chef Consultant
773-283-7211 hm  or 773-981-7211 cell
Visit my “KITCHEN STORE” 24 hours a day, 7 days a week for new recipes,
to browse our product line, or place orders at www.pamperedchef.biz/tina61775

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