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4-3-16 On our way HOME!!!

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Officially on our way HOME after Ally’s spine surgery and some hospital recovery time. Two weeks total in the hospital wasn’t too bad due to how AMAZING the team is at Cincinnati Children’s Hospital and the incredible results of Ally’s surgery. She went from about an 80/90 degree “S” curve to around 40 degrees. I believe she grew a few inches too but we still need to do an official height. Thank you again for everyone’s prayers well wishes and support!😍

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4-1-16 @ 10:45 EST — GREAT NEWS, Goal to go home this Sunday

 

Ally is still working through urine retention issues, which are pretty common after a major spine surgery.  She has not gone on her own but after lots of practice and training from excellent nurses, I am confident in cathing and we have a clear plan of steps to help her get back to “the norm”.  This  includes finding a urologist at home, with consultation on the phone from Cincinnati till then.

 

Ally has begun Cardura medicine to relax the bladder neck, but we will be adjusting the dosage on Sunday and as needed. She could not use Flomax since it would (and when attempted began to) clog her J-tube. For now we are cathing every 6-8 hours. They are hopeful Ally will resume urinating on her own again, but it will just take time. With how successful her spine surgery was, I am okay with all of this and our plan.

 

We still have a long way in the recovery process and lots to organize with home nursing, getting new medical supplies and meds, figuring out a new routine for home after the semi scary, possible stressful 6 hour van ride home, but I will keep praying and am hopeful all will work out.

 

Thanks again for everyone’s support, prayers, well wishes, gifts, meal cards, donations for Ronald McDonald House…. We are soooo blessed to have soooo many wonderful friends and family in our lives!

 

P.S. – The pics are of Ally with her new musical movies I ordered through Amazon Prime and had delivered to the hospital with some Birthday $. She’s been overall very happy and pain is back under control with twice a day Celebrex and scheduled Tylenol. She will have some extra pain meds for the ride home and soon only be on meds as needed.

Ally Update 3/31 -10pm EST

 

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Ally is kinda at a standstill as we try some methods to try to help her with urine retention and now high heartrates (??discomfort, side effect of meds???). Today she travelled to another part of the hospital and got a baseline new dexa scan to check her bone density (for possible future infusions to help with brittle bones and prevent fractures), got her hair washed and cleaned up (thanks Emma Lockwood for sharing your basin), needed a second dressing on her back due to it getting dirty, I learned to sterile cathe her….. Thank you to Terri Cox Adora Lewis, Beverly Hutch, and Michelle Denic and Crothall team (big/nice surprises) for gifts and meal cards. Thank you also to the 9 ladies who have donated $25 toward Ronald McDonald House Thirty-One Products or ordered products. It’s not to late to make a donation thru Chase Quickpay or Paypal to tina@angelally.com. Thanks again for everyone’s support and prayers!!!

 

 

 

 

 

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PRETTY PLEASE — Help our family “Pay it Forward”
1) Make a donation TODAY of $25 or ANY amount towards Thirty-One products that will be purchased for families at Ronald McDonald House Charities of Greater Cincinnati (RMH) as a way to say Thank You for ALL they have done to help our family during Ally’s spinal surgery and recovery. We are at $150 with a goal of $500.
 
You can do this by using PayPal or Chase QuickPay and submitting a donation friend to friend to tina@angelally.com
 
2) Place an order TODAY (if possible by 6pm) for yourself and I will donate my entire 25% commission towards additional products to be donated to RMH.
 
 
Both of these are really helpful in helping our family since it will warm my heart immensely to help others and “Pay it Forward” as a way of saying Thanks for a lot of the stress relieved by having RMH across the street to eat some meals, shower and nap some. I even got an hour massage there yesterday! In addition, it helps me meet my monthly sales goal as I am VERY close to becoming a director with Thirty-One.
 
Thank you to everyone’s support and prayers!!! Thank you also to those who have already made a donation and those who decide to make a purchase.
 
Any questions, message me or call 773-981-7211

Wednesday 3/30/16 – pics

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A few pictures of Ally over the last three days. One of the days she tolerated 4 hours in her chair and other days 1-3 hours due to pain from her bladder issues. She is off ALL pain meds including Tylenol and just on a muscle relaxer 3 time a day. I LOVE the hospital gowns my mom, Carol Neumann Smaron, made for her!! We are also trying out a new trach that might be more comfortable for Ally.

 

Just wanted to do a very quick post and hope to do an update on Ally’s blog today. Ally is doing well with her recovery from spine surgery (off all pain meds and only on a muscle relaxer) but is dealing with serious urine retention issues and urology is now involved. We will be here for probably quite a few more days and are almost out of meal cards. If anyone isl interested in purchasing some, I just found out there is a way to do a Gift Card through the concierge “Best Upon Request” that can be used for room meal cards, cafeteria credit, and/or them to go pick up meals and other store needs within a 5 mile radius of the hospital. Their number is 513-803-4871 and the best time to call EST is 7:30-12:00 and 3-4:30 and messages can be left in between. They are only open M-F. If we have any credit at the end, they can be turned into a gift card for gas, a store….

In addition – Ecards can be sent to Ally using the link http://www.cincinnatichildrens.org/patients/resources/ecard/. Ally’s hospital room is A340.

The other way to support us is to help us “Pay it Forward” to Ronald McDonald House and families by donating $25 or any amount toward Thirty-One items that will be donated to families that use their services. This means a ton to my heart as a way of showing thanks and will help me meet my sales goals as I work towards being a director with Thirty-One Gifts​. You can use PayPal or Chase QuickPay to tina@angelally.com.

Thanks again. Through family and friend support, things are much easier to handle, even with this setback. Looking at the silver lining of how much better Ally is due to her successful spine surgery though.

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BIG FAVOR OF PAYING IT FORWARD – Will YOU help?
Looking for 20 or more friends/family to donate $25 to help families who use Ronald McDonald House. Donate ANY amount to my PayPal account (friend to friend to avoid fees) or Chase QuickPay at tina@angelally.com. Goal is to have $500 or more by Wednesday 3/30. PLEASE share with friends.
 
As most of you know, my 10 year old, Ally is currently in Cincinnati Childrens Hospital recovering from spine surgery. We are SUPER fortunate to have gotten into Ronald McDonald House Charities of Greater Cincinnati (RMH) right across the street so we can take small breaks, showers, have some meals…. RMH is also one of the charities that Thirty-One donates to and I am a Senior Consultant with the company. Upon arrival at RMH this time and in November, we got a Thirty-One bag filled with lots of goodies for Ally and our family. I would like to donate a minimum $500 in products for them to give to future families. By doing this, I will Pay it Forward a little and also meet my March sales goal as I am close to qualifying to being a director. Will you help me and other families? If you’d like more info, feel free to contact me by messaging or email – tina@angelally.com
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