🐰 Happy Easter from Ally and our family!!!
Sunday, 3/27 @ 11:30 EST Update
Ally’s tummy is doing much better since we are giving her gut a rest to recover better from 8 hours of anesthesia and pain meds. She still has lots of gas on her morning stomach X-ray. Ally is not being fed her regular mixture but instead is getting nutrition thru TPN (a special IV food made specifically to her needs). Her intestine tract is waking up and her tummy is much better and softer. We do have to cath Ally, but she has had bowel movements on her own. We have been lowering her pain meds since she is doing so well and are completely eliminating oxycodone today. She will still have IV Tylenol and if needed diludid for pain. Ally continues to get in her chair 1x a day for 1-2 hours and we hope to do 2 sessions today and moving forward. The Easter Bunny (with mom and dad’s help on a short outing) brought Ally LOTS of goodies today to reward her for her bravery. Ally’s favorite thing in her basket is a Katy Perry DVD.
Ally will need to be in the hospital until her tummy is back to normal and she can handle her regular feeds. This could be a few days to much longer, but we are still HAPPY with her recovery so far.
Thank you again for your support, well wishes and prayers.
PS – My cell phone was replaced and is working. I can be reached at 773–981-7211 through messaging.
Angel Ally Blog - SMA Type 1 
Leave a Reply