LOTS of EXCELLENT NEWS and a small setback. The small setback is Ally had refluxed several times this morning. We think it might be since her tummy bile wasn’t draining well or ??? but Ally is doing better this afternoon. EXCELLENT NEWS — Ally had a new GJ tummy tube placed (which I think helped her tummy), the IR team was able to get a double lumen PICC line placed even with her difficult veins, labs are drawn, another urine analysis was done and is negative, and everything is on track!!!
“Cherry on Top” GREAT NEWS – We got a call from Ronald McDonald House and they have a long term room for us. They had us on the original waitlist from last week’s postponed surgery so our name came up quicker!! We only had to pay one night at the nearest Marriott and now donations for each night at RMH, plus they provide several news.
All in God’s Time!!! Thank you again for everyone’s support and prayers. It really means a TON!!
Angel Ally Blog - SMA Type 1 
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