Tuesday 5/27, 3pm — BIG change of plans hospital update on Ally

 

Met with Infectious Disease doc and we decided to do surgery to remove Ally’s port THIS hospital stay, most likely on Wednesday (tomorrow). She will then have a temporary line placed to receive about 3 more days of IV antibiotics IN the hospital. I feel very good about this plan since she has grown the same bacteria 3 times, it most likely lingered a tiny bit on the port (bacteria likes a foreign body) and then spread when she had her bone infusion and maybe a little during monthly flushes. It most likely even caused that fever spike during the infusion. She can benefit from a port for easy access for blood draws, infusions for her bones every 4-6 months… BUT the risks now outweigh the benefit. I am happy it will be removed and resolved before going home. Overall, I don’t think we will plan another port for Ally. We will just need to do ultrasound guided IVs, PICC lines, and/or find the best staff to access her veins when needed.

Plan will be to go home about Saturday. I am VERY grateful the hospital staff is working on consistency of care and have given EXCELLENT care. We will be home in time for Kristyn’s graduation and Melissa’s talent show.

Thank you again for continued prayers and support. Healthy visitors are appreciated.