4-4-14 Upcoming Spine Surgery and MDA Muscle Walk on Sat. 4-5-14

These are a couple of posts I recently shared on facebook.  I’ll update more soon, but Ally’s surgery date being scheduled is HUGE!!!  Also wondering if anyone wants to join us last minute for the MDA Muscle Walk or make a last minute donation?

 

Ally 2013 Soldier Field

1) WOW!! Just got the call, Ally’s spine surgery will be on April 17th with her 95% being admitted on Wednesday, April 16th. This will straighten her spine to keep it from collapsing on her lungs and internal organs, and help her stay comfortable sitting up. It is to preserve her quality/happiness of life (which is different than you and I, but still a happy life) This is a POSITIVE, yet scary surgery for her and our family. It will be a full spine fusion or may also involve a luque trolley to allow growth. We are not going to address her neck/cervical kyphosis/curving in this surgery, but will watch it carefully. We have some pre-surgery things to do (most finished on Thursday 4-3-14) and then she will be in the hospital for about 2 or more weeks after surgery. We will be in the hospital for Easter and Melissa’s 10th Birthday, so may need a little extra support from family and friends, but again, this is a positive step for Ally. Recovery will be about 6 weeks and she may be out of school for that entire time, but will receive homebound instruction and then be ready for summer school and summer FUN, especially driving her powerchair comfortably. Thanks in advance for everyone’s support and prayers!!!!

2) It’s not too late to make your donations to the Ally’s Angels Team for the MDA Muscle Walk! http://www2.mda.org/goto/ally2014 

Please consider donating $10, as it really does make a difference, gives us hope, and we LOVE seeing those that are thinking of/supporting my daughter Ally who has Spinal Muscular Atrophy and continues to beat the odds daily. You can also decide to join us for a FUN morning at Soldier Field this Saturday, April 5th.

Soooo glad to have the Shofner Family who JUST joined our team! Also Meghan Ortega, Tina Chiang, Mark Capodagli, Tammy Maruszczak Cecchini,John Cecchini, Jacob Ortiz, Kristyn Krajewski, some of Lane Tech Cheer Team… who will be with us!