4-3-13 Ally hospital update — 9 pm

Ally was good most of the day again.  We moved to treatments every 6 hours and added back in the vest (which helps to break things loose in her chest).  She needed a little motrin after the morning treatment, fine with afternoon treatment at 2 pm and then spiked a 100 degree fever and 150s heartrate (normal around 110-120s) at 5pm.  We are now giving motrin and tylenol again every 3 hours since she’s stayed in the 140s  for heartrate overall and 99s for temp, but o2 sats and lungs have been great. So plan is still to go home tomorrow as long as the fever doesn’t get higher than 100 and no other complications. She is doing her long breathing treatment with PJ now and will get another at 2 am.  SOOOOOOOOO happy to have him again tonight (and RT Jo 2 days in a row).  We also have our nurses from Sunday tonight and the lead nurse has had Ally several times before.  I’m soooooooooooo excited and thrilled to have some consistency for Ally (and me and the medical staff)!!!!!

Please say a prayer that things stay stable enough to go home tomorrow.  Plan is that my mom might pick us up with her boyfriend around 2:30 pm with our van (so Billy can work a full shift) and then our home Nurse DeeDee will meet us at home and work till 8pm and again Friday day.

Keeping my fingers and toes crossed, but Ally WILL lead us.

Thanks again for everyone’s support and prayers!!!