4-2-13 Ally hospital updates — 7 am ROUGH treatment

I know several people are not on facebook and are interested in updates on Ally, so I’ll try to update a little throughout the day here too…

7am Ally update — Ally had an okay night with a little oxygen during her treatments and I slept off and on for several hours.  Unfortunately, at the “end” of her 5:30 am treatment, she had desats into the 60s and now has some thicker tan secretions.  Treatment turned into 1.5 hours long including a trach change and huge poop explosion.  She is resting comfortably in the mid/upper 90s now.  I’m a bit frustrated that we have another new nurse this shift since I had high hopes of yesterday’s returning since she was working again.  We will also have another new RT since the others we had this hospital stay are not working.  Inconsistency in people coming in and out of our room (even though staff are nice and skilled) is soooooo hard on me and Ally.  I wish with all my heart that this would get better, but it’s something I have to advocate for almost every hospital stay. 😦  Praying for a smooth day and that this illness is not getting worse!