4-1-13 — 9 pm — Ally hospital update

Ally did okay most of the day at the hospital, until this evening at around 8 pm.  Throughout the day, we did breathing treatments and tylenol or motrin EVERY three hours on the dot.  If you went past this, she got irritable with a higher heartrate, but only low grade fevers.  She did have some attitude for our respiratory therapist, but he did GREAT with her just using a little oxygen if needed.  We even got her tummy tube changed in interventional radiology since she has a GJ tube.

Ally had one small vomit in the AM with suctioning and then a HUGE vomit around 8 pm after only being given 10mls of medicine.  We are just finishing her breathing treatment with a combo of me and a therapist who is working really well with Ally, but she did require quite a bit of oxygen during the treatment.  Glad to have lots of good help with nurses, respiratory therapists and docs today!!!!

All labs have come back normal so far, so this is probably just a bug that needs to run its course.  These setbacks mean we will not be going home on Tuesday, but maybe Wednesday, if she turns the corner and we can handle things at home.  We usually do only 2-3 breathing treatments at home and are currently doing 8 throughout the day and night.  It will get better though.

Thanks again for the prayers and support!!!  Don’t forget to go to my previous posts to possibly donate to the MDA Muscle Walk which is in 5 days.  Thank you again 🙂