Please consider joining the Ally’s Angels Team and/or donating to MDA in honor of Ally Krajewski. Ally has type 1 SMA and is almost 6 years old.
Click here to view the team page for Ally’s Angels
If the text above does not appear as a clickable link, you can visit the web address:
http://www2.mda.org/site/TR?team_id=4335&pg=team&fr_id=1468&s_tafId=3487
The Chicago Muscle Walk will be held indoors at United Center on Saturday, December 10th. Registration is at 8am. Walk begins at 10am with lots of Family FUN!!!
Here’s a little about Ally…
Ally is 5 ½ years old and has Spinal Muscular Atrophy (SMA Type 1) which is one of the 43 diseases MDA helps with. Ally is not able to make protein for any of her muscles due to this genetic disease, but she makes up for her muscle weakness with her bright eyes and strong brain. Although Ally can only move her head, fingers, arms and legs a little bit. She is very intelligent and learning to operate her own computer with her eyes and a tiny switch. Ally uses her computer to talk, play game, and show us what she knows. She attends Kindergarten at Hanson Park School. Ally is also beginning to drive a power chair with a very special lightweight controller. Every day with Allyson is a blessing, as she teaches everyone around her the true meaning of life, courage, love, friendship, and faith.
One of our dreams for Ally is to be able to attend MDA Summer Camp when she turns 6 years old (She will be 6 this February 2nd!). Although kids with SMA Type 1 used to be given a life expectancy of 1-2 years, Ally continues to beat the odds. With your help and the MDA, I have high hopes that MDA Camp summer and so much more can become a reality for my brave and courageous Ally. Other ways MDA has helped our family is by paying for the medical costs of the clinical trial Ally participated in Stanford, CA from 6 months to about 2 1/2 years old, paying for parts of her size 1 wheelchair/stroller and offering us hope and support. MDA can also help families with flu shots, clinic appointments, camp for kids and medical equipment repairs/upgrades (which we plan to do this year).
Thank you again for all your support. We hope you consider joining the Ally’s Angels Team and/or making a donation. Use the above link to make an online donation, or mail in a donation: Make all checks payable to: Muscular Dystrophy and please put my name in the Memo field.
Mail to:
Tina Krajewski
3614 N New England Ave,
Chicago, IL, 60634
Thank you for giving our family and so many others the gift of HOPE.
Sincerely,
Tina, Billy, Ally & the Krajewski Family
PS — Be sure to check out Ally’s Blog site that includes lots of pics/videos and what she’s been up to…….. www.angelally.com
PSS — We are looking for sponsors (companies and/or families) to be featured on the back of our NEW Ally’s Angels t-shirt. Minimum donation of $200 (the bigger the better). Please contact Tina if you are interested at tina@angelally.com or 773-283-7211. Logos and donation needed by November 20th to guarantee to be printed on t-shirt. Checks payable to Angel Allyson Fund NFP.
T-shirts will be sold for $10 each with donations going to both the MDA and the Angel Allyson Fund NFP. (Sizes 2T – 4XL). Contact Tina
Angel Ally Blog - SMA Type 1 
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