Watch Ch 9 WGN 9 pm NEWS tonight! You might see me, Ally and Melissa (and RN Megan) at the MDA Muscle Event with Chicago Sports Players. Ally will be paired with the Chicago Bulls Luvabulls and the The Windy City Rollerderby Gals!!! We will help spread awareness for SMA as we work towards a CURE, treatment and support for families of SMA and the other 42 diseases covered by MDA.
Just wanted to share that Ally is overall doing well. She will have her full splint/cast on till minimum Nov 2nd. Her hip bone is sooooo tiny, they wanted to give it the best chance to heal properly. This means that she has to stay flat, but we can get her out a little for some fun in her stroller/wheelchair. We are able to use regular tylenol or motrin for a little bit of pain or achiness (probably mostly from being in the spint). Ally is my HERO!!! I hope she inspires lots of people tonight too!
Ally is doing homebound school right now. Miss Clare comes everyday for an hour and Miss Eileen is also able to come for 1 hour of speech each week. We really miss her kindergarten class, but healing is most important right now and we need to do as little transfers a possible, and keep her comfortable and happy. We hope to visit school for Halloween and maybe even a couple hours each week. A special thank you to ALL of her 30+ classmates who made her homemade cards and to the teachers coordinating the cards and for sending some classwork home.
Ally is also very lucky to have music or art every week through Horizon Palliative Care. Be sure to see my last post and the video montage of Music Therapy with our family!
Check out our OUTSTANDING October Album that I continue to add too.. Click on the album cover below…
 |
| 2011-10 Outstanding October |
Angel Ally Blog - SMA Type 1 
Leave a Reply