Wanted to update you all on Ally. Here is the latest….
Ally’s pain from surgery seems overall under control with a pain med (oxycodone) being given every 4 hours through her j tube. Orthotics came by and modified her full body splint/cast (that is only across the top of her body and padding/velcro under her). She can now be transferred short distances and she fits in her chair/stroller to go home. We are also able to lift the splint/cast to the side easier for diaper changes and to use AFOs. Ally does need to remain overall flat and be transferred as little as possible. She had a metal plate and 5 screws put in her hip and since her bones are sooooooooo tiny and brittle, we need to be extra extra cautious to allow it to heal properly.
We have a little more logistics and clear orders/precautions to work out, but most likely this will all be worked out on Monday. I am hopeful (but not positive) that we will go home later in the day on Monday 10/3. We will then have a follow up with the orthopedic surgeon in about a week and might even get to simplify her splint/cast some more depending on how Ally is healing and doing. She might need to wear some form of cast/splint for around 4 weeks. Most of this time, she will spend safely in her bed or we will work out some way she can come in our living room. This may change as time goes on and as we visit the ortho department. We will not be going to school at all in the near future and hope to do homebound school with Ms. Clare.
I’ll try to add some more details soon and some new pics…. including some special visitors and meeting a new SMA family today…….
I hope today you get word that you could go home. Ally you are a super star. Happy to hear that you will be talking to another SMA family, because you were a HUGE help to our family. You were a blessing from GOD. You are a very special part of our lives and glad that there are no such things as coincedience but devine appointments. Thank you God.
That is great news. Praying for speedy recovery of her hip surgery and praying for the family. I am on WordPress.com now if you want to blog.