Here are some closeup photos of Ally with her trach and also some with her new glasses. I may use one of these for our MDA Brookfield Zoo Walk. Let me know which one you like best for the t-shirt and WHO WANTS TO JOIN THE ALLY’S ANGELS TEAM? The walk is Saturday, September 25th from about 8:30-10:30 am and zoo admission and parking is free if you raise funds and/or donate to the MDA in honor of Ally. PLEASE, please, please register online and let me know your t-shirt sizes for team and walk shirts. More details can be found at the below websites and/or past blogs.
To join our team, go to…. https://www.joinmda.org/mdawalkchicago2010/AllysAngels
If unable to join us, PLEASE consider making a safe, easy, online donation at… https://www.joinmda.org/mdawalkchicago2010/tina
We do two walks each year and each donation brings us one step closer to a cure for SMA and offers families affected support and resources. Thanks in advance to those able to make a small donation and for those who have supported us in the past. It really means a ton to Ally and our family!!!
For those wondering, Ally had a routine eye exam to rule out any problems and the optomotrist at Children’s Memorial discovered that she has astigmatism. If I understand right, her eyes are a different shape and she is very near sighted. This has nothing to do with her SMA and we are glad we found it. Even things she sees close may be blurry. It will be interesting to see if she gets even better at using her computer with her eyes. Unfortunately we had to wait 11 1/2 weeks for our state insurance to make and pay for her glasses and when we picked them up this week, they are very tight on her. There is a limited selection to the ones we could select, but we thought we would at least try these ones out. The lightweight, comfortable ones with polycarbonate frames are about $300, but we may be exploring these or others very soon. We might also see if there are any organizations that might help pay for glasses since the better ones are not covered by insurance. Or, we will find a way after beginning of school expenses are paid. Ally looks adorable and she deserves the best!
Thanks again for reading our blog!
Tina, Ally and the Krajewski Family
Angel Ally Blog - SMA Type 1 
Tina: love the new pix of Ally. She looks so great and her glasses are so cute! Glad you are getting back to normal and summer is finishing out w/ some FUN!! Take care
She looks great!!! I’m wondering if Stella needs glasses too. Dr. S mentioned that her eyes don’t align properly. She would come by it right seeing as my husband and I both have had eyes. Hugs to you guys! Keep up the great work!