Ally continues to do VERY well with new trach. Goal is still to go home on Wednesday 7/28 after our home nurses are trained on our vent and observe her breathing treatment. Billy and I did our official “24 hour stay” this weekend to prove we can handle all of Ally’s care. We also celebrated our 13 year wedding anniversary on Sunday. Thanks for all your continued prayers and support. Pics still coming soon.
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Angel Ally Blog - SMA Type 1 
Awesome news!!! I think about you guys always & was hoping everything was going well! Miss you guys & cant wait to see you soon!
Love, prayers & hugs ~ The Shofners
That’s great!! We’ll certainly need to get together once you’re home!!
Glad to hear Ally will be going home on the 28th. Happy 13th Anniversary . Still praying for healing and for cure for SMA.
That is the best news of the day!!! If you have ?s let me know . . has she been off it at all? If not, you will be able to wean her gradually at home just like you did with bipap! Hugs from Iowa!