Ally continues to do VERY well with her new trach and she has done well with pressure support trials, leading to a trach collar trial soon. While in the hospital we decided to have a surgery this past Tuesday to release her tendons in her ankles. She did AWESOME! Still dealing with quite a bit of hospital stress, but I must focus on the positive changes in Ally and the goal of going home around 7-28.
There are also tons of POSITIVE things about this hospital stay and a TON of wonderful caring people who go over and beyond for Ally. Just wish I didn’t have bumps mostly due to personality conflicts and some staff not truly understand what it means to have a child with a chronic condition. I am determined to find a way to stay positive and remind myself that this was the best choice for Ally. Thank you to all those at the hospital and our family and friends for your support and prayers.
Angel Ally Blog - SMA Type 1 
Thank you for the update! We have been thinking about you guys always and wish we could be closer to come & see you and help out in any way. So glad to hear how well she is doing! Nolan said something today about I need to show Ally …., but for the life of me I cant remember what it was. I will have to ask him in the morning. But it was just cute that he was talking about her. We really can’t wait to see you guys! Maybe we can take a trip and I can come see her in the hospital, see how I say we and then only I can come see her, I am sure Jas would not agree, he would want to be the one to get to go in to see her =) Well give her hugs for us!
Many hugs & prayers!
Love ya,
Jason, Monica, Blake & Nolan
Great to hear things are going well, Tina! Thanks for the updates.
Praying for Ally and hope she gets to come home by 7/28.
I am happy to hear things are going well. I think of the two of you all the time. You are a strong & awesome mom. Can’t wait to get the blog saying you are coming home.
Take Care!
Lisa