Sorry for the delay….. Ally is doing AWESOME!!!!!!!! Trach surgery went very well and she was in the OR from 4-6 pm. First full treatment was done at 8 pm including her cough assist, IPV and vest with inline suctioning. She is really clear, so next treatment will be at midnight with ME doing part of it with one of our favorite RTs, Steve. Woooohooo! Ally seems to be happy and is watching her new Veggie Tale movie from Child Life.
I’ll update more and share pics soon. Ally is beautiful with her trach and we are soooooooooooo happy she will never have to have a mask over her face again.
Thanks a MILLION for all the prayers, well wishes and support!!!!!!
God IS GREAT and we are also lucky to have sooooooooooooo many angels looking after Ally and our family!
Hugs from Tina, Ally, and the Krajewski Family
PS – She is really enjoying the FREE cyber cards thru Childrens’ website. FREE cards can be sent to Ally’s room using the link Order a free Children’s Expressions greeting card . Ally is in Room #217
PSS – Our goal is to be home in 10-15 days (once me, Billy and my mom complete a shortened version of trach training). The usual time frame is 30+ days, but we already have so much knowledge and helpful experience from all of Ally’s previous non-invasive respiratory care.
Angel Ally Blog - SMA Type 1 
very very awesome to hear, Im so glad everything has one well and she is doing so good!!!! Hugs and Prayers
Tina, I am sorry I have not been on the computer this weekend to know what was going on with Ally! She was always on my mind and prayers tho! We are so happy to hear everything is going well! We can’t wait to see you guys! Give her hugs & kisses from us and tell her we love her! Hugs to you too!!!
Love,
Jason, Monica, Blake & Nolan
Continued prayers for Ally and all of you.
So happy she did so great and we will keep you in our prayers as she recovers and you get used to the new norm. You will do great! Just know it takes a little patience to get used to things.:) Hugs!
So happy to hear things went well!!!