The Krajewski Family does 2 walks each year to raise $$$ for a CURE for SMA and support for families. Will you PLEASE consider making a donation TODAY (or before June 12th) in honor of Ally? Also looking for team members.
Please donate in honor of Allyson Krajewski who is 4 years old with Type 1 SMA. Ally and her family are praying for a cure or treatment for SMA in her lifetime. This can only happen with proper funding for clinical trials and support for families. The National Institue of Health has declared SMA as the closed neurological disease to a cure and a gateway to cure many other diseases.
Will your donation be the $$$ that allows a cure a to happen for Ally and many others? If you’d like to join the Ally’s Angels Team and help raise funds, please contact Tina at tina@angelally.com or 773-283-7211. You can also check out Ally’s latest blog updates at www.angelally.com.
Go to http://www.fsma.org/LWC/httpwwwsmarglly to make a donation and/or join our team!
Donating through this website is easy, fast, and totally secure. This is also the most effective way to support my fundraising efforts for Families of Spinal Muscular Atrophy.
Event Details
Time: June 12, 2010 from 7am to 12pm
Location: Independance Grove Forest Preserve
City/Town: Libertyville, IL
Website or Map: http://www.fsma.org/illinoisw…
Phone: (847) 373-3762
Event Type: fundraiser
Organized By: Families of SMA
| Registration: 7:00 – 8:00 am Walk: 8:30am to noon Main Walk route is 2.5 miles, there is a shorter route option if requested. The trail is paved and runs through scenic areas of the preserve. There is a wheelchair accessible play area that is a sensory-rich play environment with state-of-the-art handicap-adaptable play equipment and wide paved pathways, making access comfortable and enjoyable for all visitors. Food and beverages will be offered. A DJ will help get the crowd motivated and warmed up for the walk. Lots of fun for a great cause!! Spinal Muscular Atrophy is the number one genetic killer of children under the age of two. SMA is an inherited and often fatal disease that destroys the nerves controlling voluntary muscle movement, which affects crawling, walking, head and neck control, and even swallowing. Two new-born children are affected each day in the United States, approximately 1 in 6,000 live births. One in every 40 people carries the gene that causes SMA, which means there are more than seven million carriers in the United States alone. Currently there is no treatment or cure. Families of SMA is an international nonprofit organization founded in 1984 with the mission to find a treatment and cure for SMA. FSMA is made up of more than 65,000 members and supporters and has funded more than $50 Million in leading research programs since its inception. |
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| For more information please call Janet Schoenborn at (847) 373-3762, or email at Illinois@fsma.org
To Join Ally’s Angel’s Team — contact Tina Krajewski 773-283-7211 or email tina@angelally.com PS — Also in need of donations for our raffle (Tickets, gift certificates, prizes…). Contact Tina or Janet if you can help!!! |
Angel Ally Blog - SMA Type 1 
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