Sorry for the delay in updates. We’ve had a few small rollercoaster rides dealing with SMA and illness, and tiny bumps with the hospital, but OVERALL things are going well as Ally finds whatever illness she currently has, probably mostly viral that takes time and lots of treatments.
Here’s my recent facebook entries…
Sat – 7:40 pm —- Ally is doing good, still needs lots of treatments ot get her left lung completely open, but overall she is GOOD! Not sure how many more days of treatment every 2-3 hours and the extra bi-pap pressure it will take. So glad that things are overall going very well at the hospital with only a very few bumps. This is a rollercoaster, but we are doing okay.
Little crazy/kinda silly situation. I can barely sleep at all this hospital stay, even when we have the best therapists and nurses super familar with Ally and she is stable. Two times, I tried 5 mg of ambien sleep pill, but the results were 5 hours of sleep on Thursday and 1 1/2 hours of sleep today. Without it, only 1-2 hours at a time. UUUggHHH!
Any suggestions to get sleep???? Thought about a glass of wine or drink, but don’t have any here and wouldn’t walk to a bar alone or even want to be in one. CVS is kinda close, but its really cold outside. Not sure the best “drug” or natural remedy to buy either??? Help, I need to get a little rest, while I have GREAT help the next couple of days.
Angel Ally Blog - SMA Type 1 
If you need something to help you sleep try drinking a cup of hot chocolate or warm milk with a little vanilla in it. It always helps me to get a good nights sleep.