2pm – Ally is having some trouble again, after having a wonderful day yesterday. No fever, no thick or colored secretions, but she sounds junky and not a lot of movement on her left side. We are doing lots of treatments and bleeding in some 02 for now. I also called the hospital to let them know that we might need to bring her in if we don’t see impovement.
6 pm – The nurses (at our home) did a great job with Ally today. Lucy was training our brand new nurse Megan (who is from Childrens). Even though Ally was having trouble, she didn’t scare Megan off and it was really good experience for her. They did three respiratory treatments together and I mostly rested to prepare for what may lie ahead (lots of nighttime treatments and/or hospital). I’m having severe back pain and then I had my second part of my root canal finished this afternoon (gotta take care of myself while I have help and Ally was stable enough). It’s so nice to have great nurses (even if it is only 2-3 days total each week). Hoping this will improve soon, need to recuit 1-2 more nurses. Bad news – Ally did start a fever of 100, but it is back down. Good news – she is off of supplemental o2. So hopefully if I stay on top of treatments we can continue to beat this at home. Still planning to go next week to switch her night breathing machine, if we don’t end up there sooner. Praying hard to God and all the angels to look over Ally.
I’ll update more as I can.
Thanks again for all your prayers and well wishes.
Tina, Ally and Family
Angel Ally Blog - SMA Type 1 
Continuing to pray for Ally. Heavenly Father I lift Ally up and ask that You place your Banner over her and heal her body of this disease and also Lord I ask that you continue being with her family and strengthening them. Be with those who are caring for her as well . In Christ Holy and Blessed Name Amen.