Just heard from Childrens Memorial. They are still in the “red zone” which means they are not even accepting patients from other hospitals, so we have cancelled our “reservation” for this week. We are tenatively looking at admitting Ally on Jan 20th or 27th for three nights to switch to the Trilogy vent/bi-pap. Praying she stays healthy.
Also sending out prayers to all the children and adults not well and/or in the hospital this week. And sending prayers to families who’s angels are now in heaven. Unfortunately two SMA children went to heaven that I know about in the last 2 weeks. I know that God is taking good care of them, but my heart goes out to their family and friends. A cure and treatment needs to be found for SMA.
On a happier note, please be sure to check out some great pics in on our picasa website. Link in the right column of Ally’s site and/or click on photo album covers in older blog posts.
Thanks for your prayers and thoughts,
Tina, Ally and Family
Angel Ally Blog - SMA Type 1 
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