My “Angels” here on Earth!

10-13-09 Ally gorgeous in green

Thought I’d try to write a quick post to let everyone know that things are going well in the Krajewski house and my “Angels”, my three girls, are doing well. One of my SMA mommy friends (Sarah Turnbull) wrote a couple of blogs about her daughter talking to angels recently. Many of the SMA children seem to look up or into a corner and get a special glisten in their eye, smile or even babble happily to something/someone no one else sees. Some of you may remember Ally’s 1 year old birthday/fundraiser when I read a poem written by another SMA mommy (Debby St. Onge) from Montana about this. I’d like to share it again (below), as it still describes greatly what our family experiences each day. I like to remind myself and others that SMA not only stands for “Spinal Muscular Atrophy”, it also stands for “So Many Angels.” Ally and her friends are angels sent down to us by God to teach us life lessons and sooo much more. Some for a short time and others for longer. Only God is in control of that timeframe. I’m so happy and grateful that Ally is still here on earth. She is a very happy little girl and although illnesses set us back and there is some suffering during our 2-18 day hospital stays, the GOOD, HAPPY days and LOVE far outweigh the difficult times. So, I know its impossible to completely understand our lives unless you live through the good and bad, but I really appreciate all the family and friends that support and prayer for Ally and us. Thank you.

DO YOU SEE THE ANGELS?

Sometimes when I see you look up at the sky
It’s as though you see angels, fluttering by.
You smile and you laugh with your eyes all aglow,
Do you have your own secret that none of us know?

Do you see the angels sent from above?
Are they here to remind us of God’s true love?

I’ll never forget that cold winter day
When they said you would never walk, run or play.
Little hope for a cure existed they said.
But you took our hand, down this path we were led.

Do you see the angels guiding our way?
Do they know we are thankful for each precious day?

Some people search their whole lives and they ask,
What is my purpose, my reason, my task?
But when you are given an angel on earth
The mission is clear, it defines your self-worth.

Do you see the angels lighting the night?
Do they give you the strength to go on with this fight?

The things you have taught us are endless you know.
The love that we feel just continues to grow.
We are lucky and blessed to have every day,
An angel from heaven to show us the way.

Do you see the angels sent from above?
Do they know that you taught us the meaning of love?

The ache that I feel in my heart every day
Is from knowing that someday you’ll be taken away.
To know you and love you is worth all the pain,
And if given the chance, do it over again.

Do you see the angels leading the way?
To God’s kingdom, where we’ll hold you someday.

By Debby St. Onge, dedicated to Veronica with so much love

Here are a few great, happy, pictures I’d love to share….

10-13-09 Pumpkin Time - Melissa and Billy

10-13-09 Pumpkin Time - Melissa and Billy 2

10-13-09 Pumpkin Time - Melissa

10-13-09 Pumpkin Time - created by Billy

10-15-09 Sisterly Love

20 Year Grammar School Reunion - Tina and Billy

9-19-09 hanging with mom on lazy

Billy and Kristyn

2009 MDA Walk