Thursday 10-8-09 12 am hospital update for Ally

Super quick update before going to bed for a “nignt nap” at the hospital.

Gotta be up at 6 am Thursday since Melissa has oral dentistry surgery here at Childrens Memorial at 8 am and Billy and her will be arriving at 7 or before. Praying things go smoothly as she needs 2-8 teeth pulled due to some gumline decay issues and serious cavities in her baby teeth. We’ve been unable to find her a good pediatric dentist until now (so things got worse and worse), but we are so lucky Childrens Dentisty accepted her as a sibling of Ally’s.

As you might have guessed by the title, we are STILL here at the hospital. It continues to be quite the rollercoaster ride. I told Ally we need some smooth sailing, but I guess she is an adventurous child and so the rollercoasters continue this hospital stay.

Too tired to write too much, but wanted to let others know we are okay and most of the time headed in the right direction of going home. I’m praying hard for Saturday or Sunday, but it keeps increasing because Ally is still fighing a cold with some serious bugs causing extra complications. Ally has been doing breathing treatments every 3 hours for a few days. Goal before going home is treatments every 4 hours and not have breathing trouble in between, also using little to no oxygen during treatments and no oxygen thru bi-pap. She still needs a big buffer of o2 during treatments. The biggest problem has been that when we make a change such as bi-pap settings or using our home bi-pap in the morning, Ally starts to struggle by mid afternoon and we have to go back to square 1 with her left lung beginning to collapse again. With hospital assistance we need to clear her bacterial, and possibly viral, pnumonia and we need to be sure her bi-pap settings are accuarate enough to keep her lung up. We explored using a ventilator with a bi-pap mask but ran into a roadblock of the hospital trainer thinking I would need 3-4 weeks of training before I could bring Ally home using a vent at night as her bi-pap. I have a call into Dr. Schroth for thoughts to keep Ally healthy and less likely to collapse her lung and Also the hospital plans to talk with Dr. Bach to hear their experiences.

I’ll write more tomorrow, but please know Ally is overall doing much better, but we need more support to clear this illness and be sure she doesn’t collapse another left lung.

Send FREE get well cards to Ally …. go to this link —- thanks sooo much! http://www.childrensmemorial.org/ecard/default.aspx
If interested, gifts can also be purchased online or over the phone at 773-880-4601 press 4.

Thanks again for everyones support,
Tina, Billy and the Girls