Just wanted to write a quick update to let others know that Ally is doing okay right now. We are doing breathing treatments every three hours and not getting much mucus out. She is on very little to no oxygen through her bi-pap. She is pretty alert watching cartoons with only a little napping here and there.
Her bloodwork came back yesterday with very low white blood cell count, so we have stopped her hydroxyurea for now (since that can be a side-effect). Then a little while ago, we got some very disturbing news. She has the H1N1 (swine flu) virus. The hospital has tried to assure me that the media has made a bigger deal out of this than needed and it is overall no more severe than the regular seasonal flu, but of course it is still VERY scary and dangerous for a child like Ally. Not sure how long symptoms will last and how severe it will get for her. She started Tamiflu.
I am additionally VERY concerned since we were just at the Families of SMA conference (I notified them and they have sent out an email). Most likely, this is what I came down with on Saturday and possibly Melissa had it. As I mentioned before, we thought Melissa came down with a cold, but I got pretty sick. I am just praying VERY hard that no one else comes down with this from being exposed to anyone in our family. I would have never knowingly exposed anyone to any bug and I’m feeling sick to my stomach about it. I just wanted to be sure to let others know in case they have any signs of illness so they can get tested if needed. Big signs are fever, coughing, cold flashes, possibly diarrhea… There’s lots more info on the Centers for Disease Control website.
I am trying to stay positive and of course my faith is in God.
I am praying hard for Ally and all others.
Future updates will most likely just be on her website at www.AngelAlly.com
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Thanks again for everyone’s support. It means the world to us!
Tina, Ally, Billy and Family
Angel Ally Blog - SMA Type 1 
OH MY! I can’t believe it! Like Children’s told you, it’s just like any other flu virus. Which, I know any type of flu is bad for Ally, but it’s not worse than any other. You all will definitely be in my prayers for a speedy recovery! Hugs to Ally!
Praying each moment of each day. Give Ally, Melissa, Kristyn, and Billy a kiss for us. And have each one give a kiss from us to YOU. Love You ALL. Only wish we were their.
Love to you ALL. Thank You So MUCH for keeping us informed.
XOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXO
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You are all close in our hearts.