Wednesday 6-3-09 – 5 am Ally in hospital

 Just a quick update and request for prayers.  Ally is in the hospital at Childrens Memorial in Chicago (picu room 226). 

Ally had a fever between 100-102 off and on for three days (gone now) and extra nasal secretions, starting to turn light yellow.  She was overall still doing well with occasional desats and extra bi-pap/treatments at home.  However, Tuesday morning she started to need tons of o2 during treatments (dropping into the 60s for o2), so we brought her in for cultures, x-ray, and at least one day of help at the hospital.

 

Ally’s left lung is whited out on the xray. She seems to have a little trouble and then boom it’s down.  There is still some air movement, but she definitely needs antibiotics and aggressive breathing treatments (every 2 hours).  She has mostly been on room air thru her bi-pap and oxygen needed during treatments with her cough assist and IPV machine.  We are now bleeding a little in thru her bi-pap breathing machine, but hopefully this won’t last long.  We also had to up her settings on her bi-pap (20/7).

Things are going pretty smoothly at the hospital, well at least up in the PICU (Pediatric Intensive Care Unit).  We spent 5 1/2 hours in the ER (in a tiny exam room) after calling 3 hours before that we were coming in, three pokes with no blood and then they got an IV line using an ultra sound to guide them, and they talked about intubation when Ally is no where near there. But once they were able to get a room up here, things have improved greatly.  A special thanks to Shamik and Michelle for a smooth admission upstairs.  We also have a night nurse and respiratory therapist familiar with Ally, which helps a ton.  Ally’s PICU plan of care makes all the difference too.

I am praying hard that this will be a short hospital stay (less than a week) with Ally getting the right IV antibiotics, aggressive treatments and coming home very soon.  The summer is almost here and this is the time we can usually enjoy being outside and doing fun things.  Of course, when we do this, we are also exposed to germs in the real world.  Not sure what exactly caused this illness, but a tiny bug becomes something big for Ally.  She does not have the flu or RSV, and we’ll see if anything else comes back from their tests. Even a tiny cold can become pneumonia for Ally so it could have been anywhere (school, home from family/friends, or anywhere).  I’m glad we caught it early and hope for the best and easiest stay for Ally.

 

Thanks again for everyone’s support, well wishes and prayers.

Tina

-- 
Tina Krajewski
Pampered Chef & Discovery Toys Consultant
773-283-7211 or 773-981-7211
 tina61775@gmail.com 

Visit my "KITCHEN STORE" 24 hours a day, 7 days a week for new recipes,
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**Please be sure to visit my daughter Allyson's personalized websites**
1) http://AngelAlly.com for updates, pics, videos and more)
2) www.caringbridge.org/visit/allysonkrajewski (Old journal website)
3) http://picasaweb.google.com/tina61775 (see our pics of Ally and family)

Allyson was born 2/2/06 and has SMA Type 1